About Brain Tumour Action
BTA is a voluntary organisation with four major aims:-
- Support for patients and carers of those with a brain tumour
- Training programmes for those working with brain tumour sufferers
- Information on brain tumours and their treatment
- Research into brain tumours
Brain Tumour Action aims to provide information, support and counselling to brain tumour patients, their relatives and friends. People may call in need of someone to talk to: we provide a trained, highly experienced counsellor to help. The Helpline is entirely confidential.
BTA also funds research into brain tumours and treatments, often in conjunction with other brain tumour charities in the UK.
We attend conferences and meetings within the public health sector to ensure the voice of brain tumour patients and families are heard and their needs represented.
We provide a set of information leaflets and booklets available for individuals and hospital wards on various aspects of living with a brain tumour. We also produce an annual Newsletter, KITE.
BTA funds nurse training in the specialist field of neuro-oncology.
We campaign at Parliamentary level to raise awareness about the complexity of the disease and its effect on families and the need for a greater commitment to research funding.
Finally we advertise local groups up and down the country as well as running our own support group.
BTA has no employees and all our work is carried out by committed volunteers.
Irene is our chair. She brings invaluable experience to the Committee from her long career in Business Administration. For the past two years she has been raising money for The Western General Hospital, Edinburgh through the fund she created in memory of her husband, John. She is also extremely active in her area U3A group of which she is Secretary and thoroughly recommends its varied programme to anyone who is retired or nearing retirement.
Jennifer, our Treasurer, qualified in 2006 and is a member of ICAS. She joined French Duncan in February 2011. She has had ten years experience of working with charities in Scotland and has audited accounts for the British Pharmacological Society, Scottish Love in Action and Music at the Brewhouse. She is Head Coach at the 1930 Swimming Club for young people between the age of three and fifteen and has been coaching at the Club for sixteen years. In her (occasional!) spare time she also enjoys going to concerts, the theatre and cinema.
Lynne is our Secretary. Her son was diagnosed with a low grade astrocytoma in 1993 and she has been involved in brain tumour advocacy since that time. She runs the telephone support line for Brain Tumour Action and also liaises with other brain tumour organisations throughout the UK. She is interested in supporting clinical trials nationally, particularly those embracing nutricutical, and less toxic modalities. Lynne is a part-time teacher and trained cousellor.
Janice is our patient representative. Having been treated several years ago for a brain tumour she now divides her time between her work, supporting her family and contributing to several charities. She is our patient advocate for Neurosurgery within The Neurological Alliance of Scotland.
Alice McGregor has been on the Committee for many years and is Coordinator of the Edinburgh Support Group. She has been involved with Brain Tumour Action since 1993. Her daughter was successfully treated for a brain tumour thirty-one years ago.
David is a computing consultant with his own company who helps maintain our website and gives invaluable support driving people to and from committee meetings and other events. His interests include painting, playing the flute, hill-walking and reading.
Eilidh is a medical student at Edinburgh University. She advises us on our use of social media.
Shona is the news editor of The Press and Journal in Aberdeen. She uses that experience to help us raise our profile and also co-moderates our Facebook page.
Not only is she a highly successful fundraiser but she finds time to volunteer with other charities in the north-east of Scotland as well. Some of the money she has raised in memory of her sister is ring-fenced by Brain Tumour Action to expand support for families in Grampian Region.